Activities

First Independent Patient's Meet of ICI in Delhi 




Rare Global AdvocacyLeadership Symposium, Four Points by Sheraton, New Delhi




Patient Access Advocacy Workshop- Lalit, New Delhi,







Race for 7- Awareness Race for Rare Disease- Mumbai


ESSIC Conference 2018- Florence


GIBS- 2018- Royal Orchid, Mumbai




ESSIC 2017- Budapest, Hungary




GIBS 2017- Royal Orchid, Mumbai




ESSIC 2016- Four Seasons, New Delhi





GIBS 2016- Taj Hotel, Mumbai


Awareness Workshop for IC/BPS- The Fern, Ahmedabad



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